The Starry-Eyed Podcast

Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

Listen on:

  • Apple Podcasts
  • Podbean App
  • Spotify
  • Amazon Music
  • TuneIn + Alexa
  • iHeartRadio
  • PlayerFM
  • Listen Notes
  • Samsung
  • Podchaser
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Episodes

Tuesday May 09, 2023

Steph is back!! She makes a brief appearance to give an update on her health and what's going on in her life! Then Jen and Producer Joel talk with WSA Educational Consultant Robin Pegg about the work she's doing to change how we think about education and our young people with Williams syndrome. Then they talk to Amy Nussbaum, mother of 4 (including Libi, who's 5 and has Williams syndrome), advocate, and member of the WSA Board of Trustees, about spreading awareness of WS in the month of May and her work to increase diversity, equity, and inclusion in our community.

Tuesday May 02, 2023

With Steph under the weather, Producer Joel steps in to co-host with Jen! They talk about his work with the WSA and being a dad of a kiddo with WS. Then they talk to author and awesome WS mom, Kristen Cagadas, about moving cross-country with a young family, finding your community, and her book: Elsie with the Great Smile: A First Look at Williams Syndrome. Learn more about Kristen and order the book at https://www.purejoymama.com/
Got a question for Jen and Steph, email us at podcast@williams-syndrome.org

Tuesday Apr 25, 2023

It's a family affair as Stephanie welcomes her sister Sarah and Jennifer welcomes her daughter, Stella!
The group talks about growing up as a sibling of someone with WS and how that eventually informed Sarah's career as a Special Education Teacher. Sarah lets us all in on a secret about being related to a person with a disability that sometimes makes the challenges a bit more bearable. 😁

Tuesday Apr 11, 2023

Jen and Steph have barely recovered from last week's episode, but they are excited to welcome Kate Bierfeldt from Massachusetts, to talk Broadway Musicals and friendship! Then they're joined by Outshine Labels founder and CEO Jessica Connor to talk about raising awareness through shirts and apparel! Email us at podcast@williams-syndrome.org. For more on Outshine Labels, go to www.outshinelabels.com

Tuesday Mar 28, 2023

This week is an extra special, extra large, extra energy show! Jen and Steph welcome Jimmy Luv and his dad, Big Jim, to the show to talk about life with Williams syndrome and spreading joy and happiness through his work with Chaos and Kindness! Bonus Treat: Justin Spencer from Recycled Percussion drops in to talk about the special friendship between his family and Jimmy! Email us at podcast@williams-syndrome.org

Tuesday Mar 14, 2023

This week Steph and Jen talk to Jake Morel from San Diego. He talks about working and the importance of music in his life. Then the show welcomes Cyndra Cole, the President of the WSA's Board of Trustees. She discusses the role of the Board and how her family is preparing for her daughter's transition to adulthood. Email us at podcast@williams-syndrome.org

Tuesday Feb 28, 2023

For this inaugural episode, Jen and Steph welcome Brendan Lemieux and Dr. Mary Van Haneghan. Brendan is an adult with Williams syndrome and he also serves on the WSA Board of Trustees. Dr. Mary is the current Executive Director of the Williams Syndrome Association.
Contact us at podcast@williams-syndrome.org.

Wednesday Feb 22, 2023

Coming February 28th! The Williams Syndrome Association presents a new podcast about living life with and caring for those with Williams syndrome! Each episode, hosts Steph Caron (an adult with WS) and Jen Keeton (mom of teen with WS) will interview a person with WS about the highs and the lows of living with a rare, developmental disability. They'll also talk to caregivers, professionals, and advocates who are raising awareness and creating a better world for those with Williams Syndrome!

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