The Starry-Eyed Podcast
Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
Listen on:
Episodes
Tuesday Apr 25, 2023
Tuesday Apr 25, 2023
It's a family affair as Stephanie welcomes her sister Sarah and Jennifer welcomes her daughter, Stella!
The group talks about growing up as a sibling of someone with WS and how that eventually informed Sarah's career as a Special Education Teacher. Sarah lets us all in on a secret about being related to a person with a disability that sometimes makes the challenges a bit more bearable. đ
Tuesday Apr 11, 2023
Tuesday Apr 11, 2023
Jen and Steph have barely recovered from last week's episode, but they are excited to welcome Kate Bierfeldt from Massachusetts, to talk Broadway Musicals and friendship! Then they're joined by Outshine Labels founder and CEO Jessica Connor to talk about raising awareness through shirts and apparel! Email us at podcast@williams-syndrome.org. For more on Outshine Labels, go to www.outshinelabels.com
Tuesday Mar 28, 2023
Tuesday Mar 28, 2023
This week is an extra special, extra large, extra energy show! Jen and Steph welcome Jimmy Luv and his dad, Big Jim, to the show to talk about life with Williams syndrome and spreading joy and happiness through his work with Chaos and Kindness! Bonus Treat: Justin Spencer from Recycled Percussion drops in to talk about the special friendship between his family and Jimmy! Email us at podcast@williams-syndrome.org
Tuesday Mar 14, 2023
Tuesday Mar 14, 2023
This week Steph and Jen talk to Jake Morel from San Diego. He talks about working and the importance of music in his life. Then the show welcomes Cyndra Cole, the President of the WSA's Board of Trustees. She discusses the role of the Board and how her family is preparing for her daughter's transition to adulthood. Email us at podcast@williams-syndrome.org
Tuesday Feb 28, 2023
Tuesday Feb 28, 2023
For this inaugural episode, Jen and Steph welcome Brendan Lemieux and Dr. Mary Van Haneghan. Brendan is an adult with Williams syndrome and he also serves on the WSA Board of Trustees. Dr. Mary is the current Executive Director of the Williams Syndrome Association.
Contact us at podcast@williams-syndrome.org.
Wednesday Feb 22, 2023
Wednesday Feb 22, 2023
Coming February 28th! The Williams Syndrome Association presents a new podcast about living life with and caring for those with Williams syndrome! Each episode, hosts Steph Caron (an adult with WS) and Jen Keeton (mom of teen with WS) will interview a person with WS about the highs and the lows of living with a rare, developmental disability. They'll also talk to caregivers, professionals, and advocates who are raising awareness and creating a better world for those with Williams Syndrome!
