The Starry-Eyed Podcast

Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

Listen on:

  • Apple Podcasts
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Episodes

Tuesday Oct 21, 2025

We're back with more Nick Doris, who is leading the WSA's Wellness programming! This week he guides Jen and Brendan through some exercises and discusses the joyous energy that comes from working with a roomful of people with Williams syndrome.
Then it's back to the sea with a couple international travelers: Holly Griffin from Western Canada and Dagmar Hakonandottir from Iceland! Together with USA's Nathan Carlton, they talk about what it's like to be on such a huge ship with so many other people with WS! Spoiler: it's pretty awesome!
As always, this episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Oct 07, 2025

It's our first two-parter! Jen and Brendan welcome our dear friend Nick Doris to talk about the WSA's Wellness programs: Wellness Wednesday and Mindfulness Mondays. This discussion on mental health and how we treat ourselves and others is so wonderful it couldn't be contained in just one show. Be sure to check out williams-syndrome.org/wellnesswednesday for more information on Nick's work.
Then it's back to the high seas where Producer Joel interviewed Kiersten Frickey. The topics range from parents to Kansas to chocolate...but ultimately it was always leading to pie.
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Sep 23, 2025

Note on Episode 67: The $15 million inheritance mentioned in Episode 67 was part of a spam email scam. Of course we didn’t fall for it, but it was fun to joke about. We apologize if there was any confusion about its validity.
This week the pod is joined by Oklahoma's very own Hope Hansen. This wide-ranging discussion covers everything from college and living on your own versus living with roommates, to being a working woman and figuring out just how much Williams syndrome plays a part in your personal identity. Hope is truly a leader in our WS community!
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
 

Tuesday Sep 09, 2025

This episode features something truly remarkable. Jennifer Scheuerell and her daughters, Liv & Kaya, share their story of 2 daughters, born years apart, yet both having Williams syndrome. There is no known reason why Jennifer and her husband should have 2 kiddos with WS, which means that the odds of these girls happening is around 1 in 100,000,000! 
Then the show is joined by Jeff Isensee who shares what he loves and what he finds difficult about being a young man who is pretty independent living with WS.
These interviews were conducted by Producer Joel on the Adventure Seekers Cruise in the Caribbean in July.
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Aug 26, 2025

WSA Educational Consultant Dr. Robin Pegg returns to the WSA's Starry-Eyed Podcast for her third year with some fantastic back-to-school advice for parents and caregivers. This episode deals specifically with setting goals and working with your team to create effective IEPs. It's not to be missed.Robin's slides from the episode plus some goal setting example templates are available here
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!
 

Tuesday Aug 12, 2025

For many of our families, Clancey Hopper has been a constant figure in the WS community. She has spent years as a kind and powerful advocate for herself and others with WS. We are so thrilled that she was able to join Jen and Brendan for a discussion on life and her work. 
Come for the convo, stay for the cloggin'!
 
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Jul 29, 2025

It's sweltering hot outside and we got some sweltering hot takes on this weeks episode!
Jen and Brendan visit with Elizabeth Bress who is a strong self-advocate from the Brevard, FL area! She shares her experiences going through school mostly mainstreamed and how that has shaped her adult life. They also discuss her Facebook group Inclusion is Love and how she accumulates data with polls she puts out allowing people with and without WS or other disabilities to share their experiences with sometimes brutal honesty.
Enjoy this frank discussion about the difficulties and the expectations around making lasting friendships!
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Jul 15, 2025

The gang is back together after a month of traveling and shenanigans! Jen, Producer Joel, and Brendan share stories of their travels to Japan, the Caribbean, and Philadelphia, respectively.
Note: On behalf of the entire Starry-Eyed Podcast family, we want to apologize to the nation of Japan for almost destroying your bullet train. Whoopsie!
In this episode, the gang are joined by Alex and Matt Boxall, twins from outside Chicago who both have WS! Along with their mom, Kristin, they share stories of growing up, getting along (and sometimes not), and how WS keeps them connected even though they've become two very different people.
This episode is sponsored by Innersense Organic Beauty.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Jul 01, 2025

This special episode takes a look back at the journey of understanding Williams syndrome—and how the WSA has grown alongside it. Through past interviews, we hear from leading voices in the field: Dr. Barbara Pober, Dr. Marty Levinson, Dr. Elizabeth Barnhardt, Dr. Becca Lyren, Dr. Jocelyn Krebs, Dr. Ben Jacob, and former WSA Executive Director Terry Monkaba.
Together, their insights paint a picture of how research, diagnosis, care, and community support have evolved over time. Whether you're new to the WS world or have been walking this path for years, this episode connects the dots between where we started—and where we're headed.
Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

Tuesday Jun 17, 2025

Recently, creator of Innersense Organic Beauty and friend of the show Joanne Starkman, invited the gang to be on her new podcast, "Trust Your Innersense." It was a wonderful conversation about how Williams syndrome has touched all aspects of our lives and irrevocably changed our respective life paths. We also get into the early days of the show and how it's evolved over the last 2 years. We hope you enjoy this this little trip into our Innersense.
Rebroadcast with permission from Joanne Starkman and Innersense Organic Beauty. This episode is sponsored by Innersense Organic Beauty!
Click on https://innersensebeauty.com/products... and complete your purchase and 25% of your purchase will go back to the WSA!
Also use promo code MORGAN15 to get 15% off your first purchase!

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