The Starry-Eyed Podcast
Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
Episodes

48 minutes ago
48 minutes ago
Gird your ears for Producer Joel has lost his voice. Before it went completely away, he was able to spend the week at Camp Blue Skies in Georgia, with around 75 adults with Williams syndrome.
Camp creator Dick Sesler and his son, Brent the Mayor of camp, sat down to talk about the need for community for our adults and what the future holds.
Then, Producer Joel set up the camera and mics and interviewed whoever was willing to sit down - making for a fantastically eclectic segment!
For more information about WSA Camps including Camp Blue Skies, go to Williams-syndrome.org/camps.
Croutons & Hearts!

Tuesday Mar 11, 2025
Tuesday Mar 11, 2025
Two years! 53 episodes! 3 podlet mini-sodes!
Two years is longer than Blackbeards reign of terror on the high seas!
Two years is longer than the existence of the Pony Express!
Technically our show has lasted longer than the Disco era (2 years...look it up)!
On this episode, Jen and Brendan welcome Jon Kent, who has been a part of the Williams syndrome community for decades, but only recently joined the staff as the new Vice President of Philanthropy and Communication. He helps us understand that "fundraising" isn't nearly as scary a word as some of us might think.
Then we take a trip down memory lane revisiting some of our favorite moments, guests, and episodes from the last 2 years. Thank you all so much for coming along on this journey. We can't wait to see what the future brings.

Tuesday Feb 25, 2025
Tuesday Feb 25, 2025
In this episode, Jennifer, Brendan, and Producer Joel kick things off with a celebration—Brendan’s appointment as WSA Secretary! He is the first person with WS to hold a position on the Executive Committee of the WSA Board of Trustees!Next, we welcomed newcomer Sarah Schaefer, the new Executive Director of the WSA (Just kidding, it’s the same Sarah we already know and love)! She shared her vision, passion, and what’s ahead for the organization. It’s an exciting time for the WSA, and Sarah’s leadership is sure to bring incredible momentum.Finally, Cara Romanowski joined the pod. She’s a member of the Dream Team— our fantastic group of older individuals with Williams syndrome who inspire us with their experiences and advocacy.Make sure to “Like” and Subscribe to the YouTube version or the audio version wherever you get your podcast delights and don’t forget to leave a review!

Tuesday Feb 11, 2025
Tuesday Feb 11, 2025
This week, the pod is packed with big hearts & big laughs.
First up, Gabby Cornelio joins Brendan and Joel to talk about life with her son's feeding challenges and his own unique way of communicating—because let’s be real, words are so overrated anyway. She also wrote a bilingual book, My Brother Doesn’t Speak, but His Heart Does, proving that sometimes, siblings just get each other—no words necessary.
Then, we shift gears for a trip down memory lane with Charles Calhoun, Brendan’s partner-in-crime for 20 years through the Best Buddies program. Jen and Brendan grill Charles on their decades of friendship, the secrets to staying best buds, and whether Brendan was always this awesome (spoiler: probably).
Join us for an episode full of love, laughter, and proof that true connection goes way beyond words.
Get Gabby's book here or wherever you get your books.
Join the conversation on Facebook or by writing the show at podcast@williams-syndrome.org

Tuesday Jan 28, 2025
Tuesday Jan 28, 2025
It's tech time on the pod! Producer Joel got his son his own mobile phone and now he needs some help to make sure everyone stays safe and the technology can be used for good - not evil.
Jen and Brendan are joined by Milton Neuenschwander from Tennessee's Department of Disabilities and Aging to talk about internet and phone safety, but also how assistive technology and AI can make navigating the world a bit easier.
Then, Christopher McClung joins Brendan and Joel for a bro-down talking about mashing up country music with AC/DC. Jen joins in later to talk first and wish-list concerts!
For some resources on assistive technology and internet safety, go to williams-syndrome.org/resources/internetsafety.
To reach out directly to Milton Neuenschwander, write him at Milton.Neuenschwander@tn.gov.
Croutons & Hearts y'all!

Tuesday Jan 14, 2025
Tuesday Jan 14, 2025
Let's make 2025 the year of Croutons and Hearts!! We kick it off with another longtime friend of Brendan's, Marna Kalman. She, Jen, and Brendan talk about living independently, working in a gallery, her jewelry business, and fine art! Check out her stuff at @mbymarna on Instagram. If you'd like to collaborate with her on jewelry or send her beads to create new work, email us at podcast@williams-syndrome.org, and we'll put you in touch!
So break out into song 'cause it's the start of a whole new year with The Starry-Eyed Podcast!

Tuesday Dec 31, 2024
Tuesday Dec 31, 2024
The final pod of the year means we take a moment to look back on the year that was 2024 with the woman who kept the WSA chugging along for most of it: Sarah Giddings. From Convention to Camp to upcoming cruises, it was a year of amazing accomplishments and there's so much to look forward to in 2025.
Our final guest for 2024 is one of Brendan's best friends, Bret Fleming. They discuss all the music and mayhem from the last 25 years! Then Jen and Producer Joel surprise them with a game to determine who knows whom the best!
Thank you to all the audio listeners as we have passed over 10,000 downloads! Keep listening and we will keep the episodes coming!
If you'd like to be on the podcast or have questions for the hosts, go to Williams-syndrome.org/podcast!

Tuesday Dec 17, 2024
Tuesday Dec 17, 2024
The holidays are upon us and we are celebrating with a time traveler (no, not the Ghost of Christmas Future). Henry Stilwell (a.k.a. Li'l Henry) joins the pod from New Zealand to talk about the summer, his TV show, and his future aspirations. Then we welcome Paola Martínez Vélez from sunny Miami to discuss her journey with WS, advocating within the Latino and Hispanic communities, and her wonderful online store Pabea.

Tuesday Dec 03, 2024
Tuesday Dec 03, 2024
Today the pod welcomes WSA Director of Operations Bethany Walton to talk about gift giving WSA-style! She discusses the new WSA Vendor Network, as well as highlighting store items in the WSA Store and at Outshine Labels.
First, Producer Joel joins Jen and Brendan to talk about the NFL's My Cause My Cleats campaign, signature beers, and all sorts of other December wonderfulness!
If you'd like to see businesses that support the WSA and the WS community, go to www.williams-syndrome.org/vendor-gift.
If you'd or your business would like to join the Vendor Network, fill out this questionnaire: https://form.jotform.com/242916661313152

Tuesday Nov 19, 2024
Tuesday Nov 19, 2024
On this episode, Jen and Brendan welcome Anja Kaneski who lives on her own in a group home and holds down a job in Brainerd, MN! She shares how the sudden, exciting changes in her life also bring about anxiety and stress, and the techniques she relies on to even out.
Then we explore the complex world of those who have a diagnosis of Williams syndrome and Autism. Dr. Elizabeth Barnhardt and Dr. Becca Lyren, who recently spoke on this subject at the 2024 WSA Convention, join to explain the diagnosis, answer questions, and give some guidance if you suspect your love one may have a dual diagnosis.
Don't forget, if you'd like to be a guest on the podcast, go to https://wkf.ms/3C2Ghvd and fill out the form.
