The Starry-Eyed Podcast

Ep 45 - Loréal Lips and Dual Diagnosis with Anja Kaneski and Drs Elizabeth Barnhardt and Rebecca Lyren

On this episode, Jen and Brendan welcome Anja Kaneski who lives on her own in a group home and holds down a job in Brainerd, MN! She shares how the sudden, exciting changes in her life also bring about anxiety and stress, and the techniques she relies on to even out.
Then we explore the complex world of those who have a diagnosis of Williams syndrome and Autism. Dr. Elizabeth Barnhardt and Dr. Becca Lyren, who recently spoke on this subject at the 2024 WSA Convention, join to explain the diagnosis, answer questions, and give some guidance if you suspect your love one may have a dual diagnosis.
Don't forget, if you'd like to be a guest on the podcast, go to https://wkf.ms/3C2Ghvd and fill out the form.

Ep 44 - Dancing Through Life with Rebekah and Ellie Stewart

Today on the pod, we welcome from the great state of Iowa's Rebekah Stewart who had a up close view of her daughter Ellie's (13 WS) journey with the University of Iowa Dance Team through the Women's NCAA Basketball finals. Thanks to Team Impact (teamimpact.org) for helping Ellie get this amazing, once-in-a-lifetime opportunity! Jen, Brendan, Rebekah, Ellie, and eventually the whole Stewart fam take a wonderful scenic route telling stories and sharing experiences in what we hope will be a comforting listen on an otherwise chaotic day.
If you are interested in being a guest on the podcast, please go to Williams-syndrome.org/podcast and click on the interview request form!
Croutons & Hearts!

Ep 43 - Fight for Your Rights with Delaney O'Connell and Chad Wilson

Today's show exercises our civic duty as Jen and Brendan are joined by Delaney O'Connell, who is featured in the documentary Patrice, about a couple trying to fight the system that won't let them marry. On this show, we get to hear Delaney's story and how important self-advocacy is to her.
Then we are joined by Chad Wilson from the Minnesota Disability Law Center to talk about how to make sure your voice is heard at the ballot box. Whether it's transportation issues or understanding what is on the ballot, Chad shares some resources and tips on how to make your voting experience successful.
For more voting resources, go to https://www.williams-syndrome.org/resources/voting-resources

Ep 42 - Old Friends/New Challenges with Seth Link and Lisa Elm

Croutons and Hearts, my friends! This episode, Brendan introduces us to one of his longest and best friends: Seth Link. Seth tells us all about balancing the stress of his job with the rest of his life and how important the connection between friends is to him. 
Then we are joined by Lisa Elm who manages PACER's National Bullying Prevention Center. We also get into the huge part she's played in the creation of The Girl Who Cried Different by previous guests Tommy Barbarella and Mariella Elm (spoiler: she's Mariella's mom). I say we, because Producer Joel pops in when Jen has some heat related internet issues. But hey! That's the way the cookie crumbles.
Like and subscribe and leave us a review here or on the video version on YouTube!
 

Ep 41 - Staying Busy with Leo Ryan

After plotting a mob-like takeover of jobs at Disney, Jen and Brendan are joined by Leo Ryan! He took brief break from doing seemingly everything to chat about working, volunteering, and giving back to the younger members of the WS community. You can look for him probably zooming from activity to activity on the WSA Adventure Seekers cruise next summer!
Reach out to us at podcast@williams-syndrome.org for information about anything you heard on the show or to let us know you want to be interviewed!

Ep 40 - Back to It with Joelle Packard and Robin Pegg

It feels like an eon since we did a "regular" podcast, but here we are! Brendan is sandwiched between Producer Joel and Joelle Packard - who tells us all about her experience in college. Back-to-School continues with Robin Pegg joining Jen and Brendan to really get into the nuts and bolts of how students with Williams syndrome learn.
The materials Robin references are found here: https://www.williams-syndrome.org/featured-education-resources

Ep 39 - 15 Minutes of Fame Live from Camp Whispering Trails!

Jen and Producer Joel are live at the WSA's Whispering Trails Camp for the Teen Camp's "15 Minutes of Fame" Talent Show! Join them as they channel their inner Gail and John from Pitch Perfect and provide commentary and cheers for the performers. 
Honestly I don't know if this show will be any good on audio, but we had a lot of fun recording it and I wanted to give people a taste of what WSA Camp is all about!
Video version available over on the WSA page on YouTube.

Ep 38 - I Got Next! Live at the 2024 WSA Convention

Recorded live in Phoenix at the 2024 WSA National Convention, Jen, Brendan, and Producer Joel welcome Emmy Coggshall and Chris Baxter to discuss their upcoming movie "I've Got Next" and the aspiration of inclusivity in front of and behind the camera. Then Gianna Morello joins the gang to talk about being on the Board of Trustees and a leader in the WS community.

Ep 37.75 - Post Convention Podlet

Brendan got sick. Jen got sick. Joel got sick. A good time was had by all!
The 2024 WSA Convention in Phoenix was a rousing success. Unfortunately the live podcast footage hasn't been delivered yet, so that will be released at a later date.
Meanwhile, an exhausted Brendan and Joel do a quick recap of the Convention and look ahead to future episodes!
Thank you to everyone who said HI to us at the convention.

Ep 37.5 - It's a Convention Podlet with the Gang!

The time has come! Preparations for the 2024 WSA National Convention in Phoenix are in the final stretch. The gang has just a few minutes to get together, do some last minute chatting, and get ready for the Live Podcast show on Wednesday, July 10th at 4PM!
If you come up to any of us and say "Croutons & Hearts," we'll give you an official Starry-Eyed Podcast sticker!